The group of young women singing in this video have the most beautiful voices! I think that music can be very healing!
Let the Christmas season begin, the tree is up and decorated! The stockings are hung! The presents are purchased and wrapped!!Olivia decorated the tree and the railing on the stairs and they both look beautiful!! Olivia has an artistic eye!
Today when I got up, I could barely walk due to the pain. I don't know what triggers the painful throbbing. Maybe it is because my body was "still" and quiet in bed for a few hours. I think that my walking balance is terrible! I felt like I was going to fall over, I had to grab onto the walls or chairs. I kept saying "Whoa Nelly whoa." It is really such a strange feeling when your balance is off. Several times I had to sit down because my balance was so off. It is difficult to describe the feeling but the best I can compare it to is when you get off of a really long thrill ride and you feel sort of lightheaded and airy and off for a bit. But then you feel OK in a few minutes!! However, with Parkinson's you don't get to the OK in a few minutes or a few hours. You just feel totally off balance. My Sciatica pain was not as bad in the afternoon and evening, I would say it is a 7 on a scale of 1-10. I can't wait until I can get another laser treatment. I really hope that the laser will be my answer to pain management and pain reduction.
I spent most of the weekend on the couch. I did go shopping at Macy's with my sister after dinner on Thanksgiving. I ran into my bestie Priscilla and her adorable granddaughter. They were shopping and then driving to Pittsburgh to see Priscilla's other granddaughter Keara. Keara is Priscilla's deceased daughter Krissy's daughter. Priscilla usually goes to visit her once a month!
When I do too much, my back goes out and my PD really acts up. Dan and I went to the cemetery as usual today. This is the first time in 19 years that I didn't get out of the car. It was rainy and wet and my balance was so off! I was afraid I would fall. When we were there last Sunday, Dan had to hold onto me the entire time, he basically had to carry my weight as we walked to her grave site. My balance was so off that I just couldn't walk on the ground without total support. I worry daily that I will be a burden to my family! I also have had problems getting up from the couch! I have to bounce up and down(like an idiot) on the couch a few times and grab onto the coffee table before I can get up.
I am so tired of having Parkinson's and it is only a few months. I hate that I walk leaning forward and having to hold onto furniture and counters. I hate that I need to remember to take my meds or my symptoms will be more apparent. I hate that I have to take a walker everywhere I go. And I hate that I have difficulty getting up and down off of furniture and out of bed in the morning! I also hate that my gait freezes now and then and/or my entire body freezes and I feel like a stupid moron when it happens. I hate that I have to have a death grip on the banister when I go up and down stairs. I hate that my life is dependent on Parkinson's doctor and pain management doctor visits and PT. I can't stand long and I hate that, I walk slowly and I can't stand that either. That all being said I now am so so, so sleepy and tired all of the time. I have fallen asleep sitting up and I was never even able to do that before. And when I fall asleep during t...
My PT is wonderful! She is the person who suggested that I most likely have spinal stenosis in addition to piriformis syndrome. Her group has weekly meetings and they discuss their patients conditions(no names of course). The 8 physical therapists she works with all think I have spinal stenosis. Tomorrow I see my pain management doc so I will talk to her bout it. I also have an appt in July with s neurosurgeon to also discuss m surgical options if any! Computer artwork of a brain affected by Parkinson's in which human neurons ( green structures ) are studded with the Lewy bodies ( orange balls ) that characterize the disease. Credit: David Mack Getty Images My PT told me that she and the other PTs she works with went to a convention in the city held by a top movement disorder specialist. She told me the doc's name but I forget it! This doc is c...
This is a post from my last year's blog!(Thankfulmomoffive) I wrote a blog about 365 days of being thankful. This time last year, I had no idea that I had Parkinson's. I knew for a fact that I had sciatica!! I STILL have the same sciatica pain!!! Parkinson's was not on my mind!! I think I had Parkinson's symptoms last year and just attributed it all to sciatica issues! I was off balance, had difficulty getting up from a chair, and had difficulty turning over in bed. Now it runs my life 24/7!! I have to make sure that I take my meds and have a walker with me! I am still so thankful for the family and friends who share my life! Today I am thankful that I went to acupuncture with Renee! I was a virgin acupuncture patient! I must admit that a few of the sticks hurt a little but I am willing to do anything to rid myself of the sciatica pain. The room was warm and soothing and ...
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