"Do you REALLY have Parkinson's," asked the ER doctor ???

        I have felt sick for the last few days. I am sick to my stomach, have a fever and feel lightheaded.  I am really hoping that I don't have Pancreatitis because I am prone to it.  I haven't been able to take my carbidopa-levodopa because anything I put it my mouth doesn't stay down. I am wondering if there are inhalants for carbidopa-levodopa. because other people have told me that the medicine itself makes them queasy. I have not had that problem before. Without the PD meds, I feel like a Gumby doll, no structure to my body, it kind of  just falls over or bends here and there, no control over it. I think Gumby has more structure to his body than I have right now. Dan and I went to the cemetery because we go every Sunday to visit Amy and my dad.
        I had book club Sunday night but I just couldn't make it.  I really wanted to go because I love all of the women in the book club and it was a great book for discussion!
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        On Monday morning I got up at 6 am and told Dan that I needed to go to the ER because the pains were so bad. I showered quickly, packed my bag, sent a few emails and off we went about 7:30.  We got to the ER about 8 a m and they took me in right away.  I told them that i ad been sick for a few days and was worried that I had Pancreatitis again because I had had it a few times in the last few years.  They ran a few tests, blood tests, CAT scan, etc and said I was fine.  They gave me some stomach meds and I started to get dressed to leave. Then the PA came back in and told me that they had misread my CAT scan and that I had inflamed colitis.  I thought colitis meant an inflammation so do I have an inflamed inflammation of the colon? Anyway, they told me that I had to stay because it was so severe.  The internal med doc came in while I stood up to wash my hands and I walked back to the bed. She asked me if all of my medical information was up to date and I said yes, I think so from everything I was asked. She then said to me, well, it says  that you have Parkinson's disease, do you? And I said yes, I do. Then she said, I just saw you walk from the sink to the bed and you walked just fine.  I told her that i have akinetic Parkinson's and I was diagnosed in Jan of 2019 by one of the hospital system's neurologists and then I went to a Parkinson's specialist also employed by the hospital's health system.  DO I REALLY need to prove this to an ER doc? Who would LIE about having PD? Who wants to have it?? NOT ME!  I definitely don't want to have it!!  That doc made me feel like I should hide my PD.  I don't have tremors  but don't doctors realize that everyone doesn't have/get tremors and some people start off without tremors and/or develop them later in their disease progression.  The PA came back in and told me that a bed was almost ready and by then it was almost 3 p m, I had been in the ER from 8 a m.  Then I felt funny about having PD when I was up on the hospital floor. I didn't want to bring it up to any of the floor doctors. But when they went over my meds I told them I took carbidopa-levodopa for PD. None of them made me feel like they didn't believe me.  I was so sick and so nauseous that that was the only thing I wanted them to deal with. I got IV antibiotics for 24 hours and got some stomach meds and I started to feel better by Tue morning.  The floor doc said I could  go home if I ate lunch so I was determined to eat it.  I ate half of a chicken breast, half of  a dinner roll, half of the fruit cup and half of the ice cream.  I felt like i was going to be sick but I held it down until the nurse came in and asked me if I had eaten. I said yes and she came over and lifted the lid off of the plate and then she looked in the trash. What was with this staff?? CRAZY!! I was just glad to get to go home. They let me leave by about 4 pm and I was so happy to leave. They gave me a prescription for Reglen which is a stomach med and OMG, it is life-changing for nausea!!!

Comments

  1. In my Parkinson's Foundation Aware in Care kit it says Reglen shouldn't be taken with Carbidopa/Levodopa.

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  3. yes that is correct Reglen is a dopamine blocker ..and is not a great drug when you have PD>..having said that pain is pain..there are other drugs for stomach aches and nausea that are better...Zofran) for nausea, and erythromycin for gastrointestinal motility.

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