Today I am in Pain, but it is a REALLY GOOD PAIN!!!

        Today I am in pain but it is a really good pain!  I had insomnia most of the night, but fell asleep from 5 a m until 9:30 a m.  Sleeping four hours in a row is just a wonderful feeling! When I got up, dressed and showered I met my sister at the gym. The class we wanted to attend was cancelled but we walked on the treadmill, rode the bikes and went in the weight room.  After our hour at the gym I came home and made lunch/dinner. I was hungry for real food so I made breaded chicken cutlets and baked potatoes.  My Physical Therapist Emily came for our 1 hour in home therapy.  I really like working with Emily, she is sweet and she gets it that my brain just doesn't always process everything the way I want it to.  The chicken was cooking while I was doing the exercises and I was so so hungry!! We started the LSVT BIG program.  I was OK doing most of the exercises but it is difficult for me to switch to the next one. I guess my PD brain does not make transitions easily.   I am in pain but I think it means that I am doing the exercises correctly! I am supposed to repeat the exercises at least once a day. I don't know if I can repeat them today because my Sciatica is back with a vengeance.  Tomorrow I am going out to lunch with a few bereaved moms.  And on Thursday I am going out to lunch with my friend Leslie!!
         After Emily left, I ate lunch and it was so delicious!!(Always about the food)!!  Dan came home awhile ago and said......mmm, something smells really good!  I put a lot of fresh garlic on top of the chicken and the house smelled so good.
My friend Patty sent me this medal in the mail with a sweet note! Pope John Paul II is the patron saint of Parkinson's disease.  He was always my favorite pope!   I was quite touched that she thought of me and sent me this gift! Patty went to high school with me and my sister.  She is the oldest of 7, we had the same last name but were not related.  Sadly, she is also a bereaved mom. I am glad she has faith in  God because it makes a loss of a child a bit easier to handle.  She is also an adoptive mom. She has two sons that were adopted from Russia!   Next month will be the one year anniversary of my Facebook Group   People With Parkinson's!  I think there are over 700 members, not too shabby for the first year! I 

Comments

Post a Comment

Popular posts from this blog

June 2

Image
                June 2 is a very special day in our family.  It was the day that my beloved daughter Amy was born. I was so excited to have a beautiful little girl.  She was my most precious gift and that feeling has never changed.   Amy died at age 18.  After her death, life had no meaning for  us.  We just wen through the motions of living and existing because we still had to finish raising Renee, who was only 13 when Amy died. Dan had told me that friends of his, also bereaved parents, had adopted a little boy from Ukraine. I thought they were absolutely crazy.  Fast forward a few years and that tiny seed grew in my mind. Maybe it was Divine Intervention, I don't know,  but we decided to adopt from Ukraine.  I am so thankful to Ukraine for giving me two of their most precious gifts.  We must have been twice as crazy as his friends because we adopted not once, but TWICE!! We adopted Olivi...
Read more

Does My Family Really Understand My PD LIMITATIONS??

Image
        I was diagnosed with PD about a year and a half ago but I think I had it for close to a year before that. Once I got on the Carbidopa Leodopa, my life settled back into a "new normal" routine.   My painful Sciatica has always bothered me more than the PD. I don't have tremors, at least not yet. I think that is because I am in the early stages. I have a handicap license plate so I don't have to park as far away from an entrance as I use to have to park.  My husband is always willing to drop me off at the entrance if I don't want to walk as far.  But I try to do the walk so that I stay agile and my muscles don't freeze up too much.   My most noticeable trait is my slow, and shuffling gait.  I can still drive, totally take care of all of my personal needs, go out socially, travel, cook, etc.  I am scared when I have to go up a flight of stairs because I am off balance and I feel like I might fall backwards. I have a death ...
Read more

Akinetic-rigid Parkinson's Disease

Image
       My Parkinson's symptoms seem to be different almost everyday. Some days I am dog tired and other days I seem to have some energy.  It is difficult to make plans too far in advance because I never know what my Parkinson's will be like on any given day.  My worst Parkinson's symptoms are being off balance and overwhelmingly sleepy!!  I don't know if it is a Parkinson's symptom or  not but I now have such vivid and bizarre dreams! Perhaps it is the liquid medical marijuana that I take at night to help me sleep!! My sciatica,  however, seems to stay the same. It is just pain all of the time unless I take Tylenol or a muscle relaxer. I have spoken to several people who have Parkinson's and many also have sciatica. I asked the doc this morning and he said there is no corelation.   Today I saw a new neurologist at a city hospital.  He diagnosed me with Akinetic-rigid Parkinson's.  He told me that there are two diffe...
Read more