BUSY DAY and Dealing with the PAIN

        Sunday I got up and showered. It takes me about an  hour to shower. That is so annoying but it is now my Parkinson's and Sciatica controlled life! I use to be able to shower in 15 minutes and off I could go. Even when I get out of the shower, it is so difficult to dry off and get dressed!  After I finished dressing, which is such a chore, I went to Wegmans and got fruit salad for tomorrow because my daytime bereaved mom's group is having a candle lighting ceremony to honor our deceased children. All week I have prepared for this event because it takes me so long to do anything!
      The candle lighting was beautiful and bittersweet.  Everyone brought something to read and had something to say. I got the Compassionate Friends Worldwide Candle lighting ceremony and we read a lot of that.  All of the moms loved their children so much and when we are together we can freely talk about our deceased children.  I think we all shed many tears today because we miss our kids so much. I was in so much pain today! I think because I baked cookies all day yesterday and was on my  feet most of the day. This afternoon I got a laser treatment and that helped  a little. I rested on the couch most of the day after the brunch because I was in so much pain. After the laser treatment and a few Tylenol, the world look a whole lot better! My Parkinson's wasn't too bad today(I mean, it's never good), but bad comes in degrees of bad, really bad and intolerable!  Today was just bad! I couldn't sleep last night so i was really tired this afternoon but I wouldn't  let myself nap because I don't want to be up again all night long!






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