Another comment of "well, you don't have Parkinson's!!"

       


       Yesterday I had to go see an eye surgeon about removing the cataract in my right eye. My retina specialist is also going to remove a wrinkle from my eye so I will have both surgeries done at once.  Dan went with me because the appointment was over an hour away.  First I was seen by the NP who went over my meds and physical/medical history. She read each med and said "you are taking this for"...and I said yes.  Then she said "I see that you are taking Carbidopa-Levodopa and I know that is used for off label uses. You don't have Parkinson's so why did your doctor prescribe it for you?" I told her that I did have Parkinson's!  She said...."are you sure, who diagnosed you?" I told her that I was absolutely sure and that the head of neurology diagnosed me and that I had gone for a second opinion and received the  same diagnosis. She just looked at me so strangely. Then she moved on but I felt like she kept watching me.  I don't have tremors, at least not now.  I think most people associate tremors with Parkinson's.  But even people with tremors take meds that can disguise the tremors.

 
         Today I went for another laser treatment.  I really hope the treatments work because I am sick and tired of being in pain!! Four treatments down and at least 11 more to go!  I don't feel much different. The bottom of my left leg is now hurting and that is new pain, I have no idea whether or not it is from the laser treatments or is just a new pain!  After my laser treatments I went to Kohl's and did some Christmas shopping. Then I came home and wrapped some gifts. I am trying to wrap as I  buy so that it doesn't get overwhelming!! I have sold a few things on Marketplace and a woman came to pick up some purses.  I don't get it, at least 4 different people said they were coming but never showed up!! I have been listing an item or two everyday! Today I made $30 and yesterday I made $18!  I will give all of the cash I make to the girls in their stockings!
        When I was in the hospital, I  gave Dan my medical cards and driver's license because I didn't have my purse with me and I didn't want to lose them. Yesterday when I was to the cataract surgeon I didn't have my cards and I remember asking Dan for them.  He INSISTED that I never gave him the cars.  I knew I did but today I started making phone calls to get duplicates and it takes so long to go through the websites and find the forms and/or information to order duplicate cards.  Dan called while I was searching for a duplicate driver's license form and told me to check his jacket that was hanging in the garage and "LO and BEHOLD" the cards were all in there! I guess I was right, once again!!

     

Comments

Post a Comment

Popular posts from this blog

June 2

Image
                June 2 is a very special day in our family.  It was the day that my beloved daughter Amy was born. I was so excited to have a beautiful little girl.  She was my most precious gift and that feeling has never changed.   Amy died at age 18.  After her death, life had no meaning for  us.  We just wen through the motions of living and existing because we still had to finish raising Renee, who was only 13 when Amy died. Dan had told me that friends of his, also bereaved parents, had adopted a little boy from Ukraine. I thought they were absolutely crazy.  Fast forward a few years and that tiny seed grew in my mind. Maybe it was Divine Intervention, I don't know,  but we decided to adopt from Ukraine.  I am so thankful to Ukraine for giving me two of their most precious gifts.  We must have been twice as crazy as his friends because we adopted not once, but TWICE!! We adopted Olivi...
Read more

Does My Family Really Understand My PD LIMITATIONS??

Image
        I was diagnosed with PD about a year and a half ago but I think I had it for close to a year before that. Once I got on the Carbidopa Leodopa, my life settled back into a "new normal" routine.   My painful Sciatica has always bothered me more than the PD. I don't have tremors, at least not yet. I think that is because I am in the early stages. I have a handicap license plate so I don't have to park as far away from an entrance as I use to have to park.  My husband is always willing to drop me off at the entrance if I don't want to walk as far.  But I try to do the walk so that I stay agile and my muscles don't freeze up too much.   My most noticeable trait is my slow, and shuffling gait.  I can still drive, totally take care of all of my personal needs, go out socially, travel, cook, etc.  I am scared when I have to go up a flight of stairs because I am off balance and I feel like I might fall backwards. I have a death ...
Read more

Akinetic-rigid Parkinson's Disease

Image
       My Parkinson's symptoms seem to be different almost everyday. Some days I am dog tired and other days I seem to have some energy.  It is difficult to make plans too far in advance because I never know what my Parkinson's will be like on any given day.  My worst Parkinson's symptoms are being off balance and overwhelmingly sleepy!!  I don't know if it is a Parkinson's symptom or  not but I now have such vivid and bizarre dreams! Perhaps it is the liquid medical marijuana that I take at night to help me sleep!! My sciatica,  however, seems to stay the same. It is just pain all of the time unless I take Tylenol or a muscle relaxer. I have spoken to several people who have Parkinson's and many also have sciatica. I asked the doc this morning and he said there is no corelation.   Today I saw a new neurologist at a city hospital.  He diagnosed me with Akinetic-rigid Parkinson's.  He told me that there are two diffe...
Read more