Friendship and Bereaved Mom and Adoptive Mom and Parkinson's


    Today my in home PT came.  I am fairly sore after working out with her.  She is probably about 30 and in great shape. My sciatica is bothering me but it is not as bad as it was before the steroid injections. My pain management doctor gave me five injections around my piriformis muscle yesterday.  It feels like they are still working but I still hurt when I stand or walk. I was going to go to Chair Yoga or Boxing class but I am just too sore. And I don't want to feel worse!  So instead, I ironed my tablecloths for Easter and put them on the table.  Olivia and I stenciled the Easter tablecloth the first year we adopted her.  She use to LOVE to do crafts. Olya made the plastic Easter bunny the first year she was  here! I need to go buy some Easter candy to put in the basket.






My friend Amy posted this on Facebook and I just love this quote! Amy is one of the nicest, kindest, sweetest people I am fortunate to have as a friend!  She and my friend Nancy came to my deceased daughter Amy's civil trial.  I can never repay either of them for doing that. It meant more than words can express.  The word gratitude is too small of a word and the words "thankful and appreciative" are just not deep enough to express my feelings.  When you lose a child, no matter how that child died, you lose yourself and the person you once were.  The friends who stand beside you and mourn with you and support you are the best friends in the world! And I am so fortunate to have them in my life. My friends Linda, Nancy and Jackie(and later Carol) never left my side. I am even crying as I write that sentence because they are all such kind and wonderful friends and people.  I met so many new friends at bereavement groups. My friend Debbie lost her teenage son the year Amy died.  Debbie and I have a strong bond because we both lost our beloved children the same year.  My college friends also stood beside me when Amy died.  Both of them had lost adult siblings so they understood part of what I was feeling. I met my best friend Priscilla online and invited her to join a bereaved parent group that my friend Carol started.  For a long time until the group got going it was just Carol, her husband, her two adult daughters, Priscilla and me.  So we got to know each other and each other's deceased children so well. It was and still is so healing to be with them.  I could go on and on about the wonderful friends in my life but I would need to write a book to do that properly!!  Years ago I had a wonderful friend named A.  She and another friend had a falling out(I don't even know why) and that friend told me terrible things that A had said about me. It was all untrue.  I didn't know that it was all lies until many years later but I am so so thankful that I reconnected with A   Being with her was so comfortable. She was  a true blue loyal friend to my friend Roe, especially after Roe lost her son Steven. That speaks of such character! 
      Bereaved parents are a different type of people.  It is hard to explain but we are the most accepting people and we welcome new people into our groups. Only "we" get it: the grief, the loss, the pain, the longing, the exhaustion, and the desire to be with others like ourselves who also sadly "get it." We know we can never have the one thing we want most and that is to have our child back.  I wrote this essay years ago and it actually went to other countries. I had people from all over the United States and from other countries ask me if they could copy it and use it at their meetings or in their newsletter.  I had people from Canada, Australia, Iraq, and Israel ask me if they could use it.  And I had a few Jewish funeral homes ask me if they could put it in their books/pamphlets.  I had sort of forgot about it but my friend Carol reminded me. She asked me to bring it to the next meeting.

I WAS ONCE YOU                                                                        
           I have never met Carlie Brucia’s mother, Nicole Brown Simpson’s mother, Polly Klass’s mother, Princess Diana’s mother, Carolyn Bessette Kennedy’s mother or Laci Peterson’s mother. But I know them all intimately. I know what dwells in their hearts and souls everyday. Like them I buried my daughter. What am I now? Am I a daughterless mother? That sounds like an oxymoron, two words that contradict themselves. My eighteen year old daughter, Amy Marie, died on May 25, 2001. My life is forever changed. Burying a daughter is a surreal experience. There are no words in Webster’s Dictionary that can explain the grief, the heartache, the pain, the depression or the anguish. Heartbroken is too small a word. The words don’t exist because it is not supposed to happen. There are no plausible definitions that could accurately describe “bereaved parent.” Groups of words can’t be strung together on a typed page to accurately explain the grief. It is impossible to bury your child, yet it happened. Logically, the factual part of my brain processed the information. The emotional part of my brain argues with the fact everyday. Each and every morning it is still a shock to my entire being! I still peek into her bedroom and expect to find her perfectly made bed a mess of jumbled covers with my daughter snuggled deep inside of them. Parents don’t bury children! Headstones read “loving mother,” “cherished wife.” They don’t read “beloved daughter.” That is not the natural order of the universe. This was not supposed to happen to me. It always happens to other people. I see reports on the evening news, articles in the newspaper describing horrible events that resulted in the death of someone’s child. It isn’t supposed to be my child. How can this be? It can’t be changed. I can’t say, “Amy, want to go to the mall?” “Let’s go out to lunch.” She can’t tell me about her “freaking bio test” that she has to study for all night long. Things I want to say to her are forever left unspoken. How will I go on? I can’t go on, yet I do. My body wakes up each day. I don’t ask for this to happen, it just does. My lungs take in air, it is automatic, something that I have no control over. My physical body now controls the course of events in my life. I breathe, I eat, I walk, I talk, I put one foot in front of the other. I load the washer and shop for food. I can work. I can teach. I can think on the job about the job. My spiritual being merely exists. It cannot flourish or soar ever again. When my daughter died, my emotional self was buried with her. When she died, I also buried her future husband to be, my future grandchildren, my daughter’s future wedding, my daughter’s college graduation ceremony, my holiday, my joy. I buried my best friend. I buried the once perfect life that I knew and lived everyday. Tucked into the corner of Amy’s casket is my happy husband. My despondent bereaved husband now lives with me. I buried my fifteen year old daughter’s future matron of honor. I buried Renee’s future nieces and nephews. There is not enough room in Amy’s casket for all the things that died with her. Dreams, hopes, joys, lives, emotions, hearts and souls slipped into that casket with Amy. They occupy every square inch of that place. One day my fifteen year old daughter will be older than her older sister. Can my brain every understand that? Renee will have a nineteenth birthday. Amy did not. How can the impossible happen? Bereaved parents go on. We go on because we have no other road to travel. It is just we are not “normal” anymore. We used to be you. We used to be the PTO moms and the Girl Scout leaders. We brought lovely frilly fancy holiday dresses for our daughters. We were once carpool moms and soccer moms. We sat at musical recitals and listened to the first melodious squeaks and squawks of their instruments. Forgotten homework assignments were rushed to school for our children. In our heads we planned our beautiful daughter’s future wedding. Visions of the bridal gown and the reception danced in our heads. We couldn’t wait to have grandchildren and baby-sit and enjoy. We wanted to tell our daughters that their children were just like them. Our daughter’s christening gown is carefully preserved and waiting to be worn by her own children. We wanted to hold our grandchildren’s chubby little fingers in our hands and remember holding our daughters chubby little fingers in our hand. We used to answer the telephone and hear, “Hey mom, what’s up?” Now the phone doesn’t ring. And it will never ring again with that sweet voice we so desperately would love to hear. Now we are set apart. We are not normal anymore. People choose to walk down a different aisle to ignore us. It is too painful for them to think about our lives. They might take a moment to wonder how we go on. They say, “I can only imagine your pain.” That is not true. No one can imagine it unless they live it. We now belong to a new group. We never wanted to be a part of this group, bereaved parents. No one lines up for this membership. We wish our membership would never grow. I am glad you are not me.
   
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