BACK TO Using my Walker, SO FRUSTRATED!!!

       
           I am back to using my walker. There is no rhyme or reason to my Parkinson's disease symptoms.  I am so upset about it.  I fell twice and I am so annoyed.  My mind keeps thinking I can get better, but I know that will not happen!  I thought the meds would even out my symptoms but I think I need stronger doses of my medication. I am seeing a new neurologist at the end of the month, he is supposedly a movement specialist, I can't wait to see him.
        I got assessed at the gym for the Rock Steady Boxing classes. I have to start at the lowest level because I still need my walker.  Or I can do PT at the gym because I have a slip to do PT.  I will just see how I do at the first boxing class next week.
        My friend Nancy is sending flowers to the family of our friend Roe who recently passed away. I am still so shook up about her death. She missed our bereaved moms meeting this past Wed. because she said she didn't feel well and was starting a new round of antibiotics for a sinus infection.  She died the next night of medical complications.  I am still in shock.  Roe was the sweetest person ever. I am glad she is with her son Steven now but I wasn't ready to lose her as a friend.  I don't think any of us are ever ready to lose a loved one unless they live in excruciating pain.
       



Comments

Post a Comment

Popular posts from this blog

Akinetic-rigid Parkinson's Disease

Image
       My Parkinson's symptoms seem to be different almost everyday. Some days I am dog tired and other days I seem to have some energy.  It is difficult to make plans too far in advance because I never know what my Parkinson's will be like on any given day.  My worst Parkinson's symptoms are being off balance and overwhelmingly sleepy!!  I don't know if it is a Parkinson's symptom or  not but I now have such vivid and bizarre dreams! Perhaps it is the liquid medical marijuana that I take at night to help me sleep!! My sciatica,  however, seems to stay the same. It is just pain all of the time unless I take Tylenol or a muscle relaxer. I have spoken to several people who have Parkinson's and many also have sciatica. I asked the doc this morning and he said there is no corelation.   Today I saw a new neurologist at a city hospital.  He diagnosed me with Akinetic-rigid Parkinson's.  He told me that there are two different types of Parkinson's diseas
Read more

Does My Family Really Understand My PD LIMITATIONS??

Image
        I was diagnosed with PD about a year and a half ago but I think I had it for close to a year before that. Once I got on the Carbidopa Leodopa, my life settled back into a "new normal" routine.   My painful Sciatica has always bothered me more than the PD. I don't have tremors, at least not yet. I think that is because I am in the early stages. I have a handicap license plate so I don't have to park as far away from an entrance as I use to have to park.  My husband is always willing to drop me off at the entrance if I don't want to walk as far.  But I try to do the walk so that I stay agile and my muscles don't freeze up too much.   My most noticeable trait is my slow, and shuffling gait.  I can still drive, totally take care of all of my personal needs, go out socially, travel, cook, etc.  I am scared when I have to go up a flight of stairs because I am off balance and I feel like I might fall backwards. I have a death grip on the handrail!  I am not a
Read more

June 2

Image
                June 2 is a very special day in our family.  It was the day that my beloved daughter Amy was born. I was so excited to have a beautiful little girl.  She was my most precious gift and that feeling has never changed.   Amy died at age 18.  After her death, life had no meaning for  us.  We just wen through the motions of living and existing because we still had to finish raising Renee, who was only 13 when Amy died. Dan had told me that friends of his, also bereaved parents, had adopted a little boy from Ukraine. I thought they were absolutely crazy.  Fast forward a few years and that tiny seed grew in my mind. Maybe it was Divine Intervention, I don't know,  but we decided to adopt from Ukraine.  I am so thankful to Ukraine for giving me two of their most precious gifts.  We must have been twice as crazy as his friends because we adopted not once, but TWICE!! We adopted Olivia in March of 2007.  There is so much paperwork to adopt and we had to make several trips
Read more